Dysautonomia Decoded

Dysautonomia Decoded

Imagining PoTS Care That Actually Works

From speed dating doctors to patient led research: a vision for what PoTS care could be.

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Dysautonomia Decoded
May 14, 2026
∙ Paid

The biggest problem with chronic illness is that it rarely lives in one place. It is not one organ, one tablet, one cure. It spreads across systems, specialties, and years, leaving patients to carry the connective tissue between appointments that were never designed to talk to each other.

I watched this happen up close. My partner’s journey with PoTS wou…

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