One of the questions I get most often is some version of: is there anything I can actually do/ is there anything that will help? Are there trials I can join? What is actually happening in the research pipeline?
I have spent the past few weeks building an answer to that question. Honestly I am so excited to finally share it.
The Dysautonomia Decoded Clinical Trial Tracker is a live, filterable database covering the PoTS, Long COVID, ME/CFS, EDS and MCAS clinical trials that I have been able to verify globally as of September 2026. Every entry has been individually checked against trial registries. Every status is accurate to the best of my knowledge at time of publication.
This one is just for paid subscribers .. as my way of saying thank you for making this possible.
